<?xml version="1.0" encoding="utf-8" ?><rss version="2.0"><channel><title>MyLot Discussions About chronic illness</title><link>http://www.mylot.com/w/keywords/chronic+illness.aspx</link><description>MyLot Discussions About chronic illness</description><language>en-gb</language><item><title>Chronic health problems...a license to be cranky and demanding?</title><link>http://www.mylot.com/w/discussions/2188288.aspx</link><description>[em]confused[/em] Hello all :))

I know of a number of people who suffer with chronic illnesses (I am one of them), and there are some who seem to take it in their stride and maintain kindness toward others and stay as independent as possible.

And then there are those who seem to use their illnesses as a license to be demanding, attention seeking, and perpetually grouchy or even mean. When is it okay to tell them to stop it?

Do you know people like this? How do you deal with them, or do you just humor them because they are ill?

Myself, I like to live as independently as possible, still contribute, and such. And I hate to put others out, even though it is sometimes necessary to ask for help.

Your opinions and experiences are most welcome :))

Karen</description><pubDate>Sun, 22 Nov 2009 21:01:43 GMT</pubDate><author>PeacefulWmn9</author></item><item><title>Guess What, You Don't Know Everything!</title><link>http://www.mylot.com/w/discussions/1120204.aspx</link><description>I'm living the stereotype. I'm a Disabled Vet who can't work and can't always function well on my own. However, I'm out and about some days, play guitar, active in my church and try to volunteer with the Red Cross when I can.

Because I can do some things (and I'm much better than I was over the last 5 years), people think I should be able to do everything I used to do.

Between a bad memory, a constant dizziness and no sleep schedule, I am very undependable. People ask me to do things, and I am more than willing, but I always have to let them know that I may not be able to help.

I am also accused of being lazy at times, since I don't work and I'm not yet dependable enough to look for a job. I mean, would you hire a person who can only come in "when I feel up to it"?

So folks, here's a friendly reminder. That neighbor, friend, relative or whatever who only seems to do what he wants to do, there might be more to it than just laziness... although that might be the case also. ;~D</description><pubDate>Sat, 02 Jun 2007 21:31:16 GMT</pubDate><author>ParaTed2k</author></item><item><title>Chronic fatigue Syndrome - what treatment helps you?</title><link>http://www.mylot.com/w/discussions/2041387.aspx</link><description>What have you found that helps you with CFS? Do you take medication, vitamins, etc. How severe is your fatigue? Do you ever have weeks or months when you get some relief? </description><pubDate>Wed, 17 Jun 2009 01:54:39 GMT</pubDate><author>tiffanymarie</author></item><item><title>Smoking kills but they dont understand!</title><link>http://www.mylot.com/w/discussions/2040818.aspx</link><description>It is well known fact, smoking kills and not a word they understand, its usually taken very lightyly, puff after puff, college boys end up in smoke, not knowing what are they doing, have a feeling of a macho man, but its the call to death they are giving!</description><pubDate>Tue, 16 Jun 2009 11:47:22 GMT</pubDate><author>dhawanbm</author></item><item><title>Chronic Illness</title><link>http://www.mylot.com/w/discussions/2013910.aspx</link><description>I'm dealing with a chronic illness that has been going on for several years now. I was wondering if any of you are also chronically ill? How do you cope? What are you dealing with?

I have 3rd stage Lyme Disease that went undiagnosed for about 30 years. That has lead to other issues and now I'm disabled. 

Please share your coping methods if you will...TIA!!

</description><pubDate>Tue, 19 May 2009 13:19:25 GMT</pubDate><author>mahea01</author></item><item><title>It would not happen to me!!!!</title><link>http://www.mylot.com/w/discussions/1993174.aspx</link><description>Have you ever seen or heard about a person who has had a bad experience and is not living a normal life after that. examle a car accident leaving a person disabled, or illnes leaving a person with cronic medical condition.

I have never heard of dialysis treatment and I never though i would become croniccaly ill. Now I have to recieve dialysis treatment because my kidneys failed. I had two transplants but both rejected. I have been on treatment fo many years now but still can't believe such a thing could happen to me.

Things only happen to other people, until they happen to you. Then you are the other person. We are all the other people and things can happen to you. Live everyday with what you have and enjoy it. Tommorow it might be gone. cronic treatment is hell, I wish for no one to have it.
</description><pubDate>Wed, 29 Apr 2009 01:47:22 GMT</pubDate><author>Beertjie</author></item><item><title>Juggling medical conditions</title><link>http://www.mylot.com/w/discussions/1861007.aspx</link><description>It's one thing to have a medical condition. You go to the doctor, you listen to the recommendation, you decide what to do about it. If you're like most people, you usually go with the doctor's first recommendation. But what do you do if you have two medical conditions and you have two doctors telling you two different things?

Couple of examples that I have run into:

Rheumatologist says keep your salt intake up, it seems to help with the Fibromyalgia. Cardiologist says reduce your salt intake due to irregular heartbeat.

Rheumatologist puts you on medication for fibromyalgia. OB/GYN says get off the medication due to pregnancy.

Those are probably obvious choices. A heart condition is more serious than fibromyalgia and so is a pregnancy. But what do you do if the two medical conditions are about even in seriousness? Eeny meeny miny moe? Consultation? And if you can't get the two doctors to agree?</description><pubDate>Tue, 06 Jan 2009 11:24:21 GMT</pubDate><author>dawnald</author></item><item><title>what is the toughest thing you face being only human?</title><link>http://www.mylot.com/w/discussions/1839917.aspx</link><description>the toughest thing that i face being only human is having autism and a little chronic illness, what about you? is it the economy, getting along with others? apathy, empathy, greed?</description><pubDate>Fri, 19 Dec 2008 09:08:37 GMT</pubDate><author>staylor29a11</author></item><item><title>My first book has gone to the printer!</title><link>http://www.mylot.com/w/discussions/1559426.aspx</link><description>I'm SOOOOO excited and anxious! I just finished a biography of what Jesus has done for me since I was 22 years old. I'm now 55, almost 56, Lord willing. The title of the book is, "Looking Up When Your Circumstances Have You Down." It is a story of miracles and the sustaining power of Jesus Christ in my adult life as I was diagnosed with eight chronic illnesses, and cancer. 
It also tells how God protected me through two failed marriages, and the miraculous change, by God, of my third and final husband! I wanted to give glory to God for all that He has done for me, and to tell the world that miracles do still occur, even when we as followers of Christ don't do the right things.
It should be out in a couple of weeks online. It's in a dummy cover right now as they finish things up, but you can find it at www.wordclay.com in their bookstore. I'm an RN, so this is my first attempt at writing. I have felt the need to do this for quite some time, but have not had the time to do it until now. I would love to hear from other writers.
Respectfully, Nanikj AKA K.J. Jacobs</description><pubDate>Fri, 13 Jun 2008 08:26:31 GMT</pubDate><author>nanikj</author></item><item><title>Fibromyalgia Sucks</title><link>http://www.mylot.com/w/discussions/1710851.aspx</link><description>Usually I am there for people. I'm the one that listens and tells you it will be okay. Well today I feel like no one is there for me. I have fibromyalgia and I try really hard not to complain too much about it- but today I just have to say, this sucks. I hate feeling this way. I am grouchy and short tempered because I HURT!! I am in freaking pain and my husband can't seem to understand why I am not acting all happy and bubbly. When I try to smile and be sweet, it doesn't work because I am gritting my teeth, my nerve endings are screaming, and even my clothing hurts my skin. WHY do I have to put up with this? Does someone out there have fibro like me and can tell me what to do about my skin hurting? The pain pills don't seem to help.</description><pubDate>Fri, 19 Sep 2008 20:57:13 GMT</pubDate><author>Shawna718</author></item></channel></rss>